I've been trying to get another EEG for Austin. His pediatrician agreed to give us a referral and promised that his nurse would call us as soon as it was set up. So I waited for a few days and still I hadn't received a phone call. I thought maybe we would be getting the notice in the mail so I waited a while longer. Then I have to admit Austin was doing very well and it slipped my mind for a little. I suddenly realized it had been almost a month so I called the pediatrician's office and had to leave a message. The next day the office called back and apologetically explained that it had somehow been overlooked. She promised to get it taken care of right away. A few days later she called me back with an appointment for March 24. Today. So I made all the arrangements for our usual back up helper to take over here with the kids. Doug took time off from work so he could go with us. This morning I made sure things were set up so that it would be as easy as possible for our helper. I wrote out the instructions and made sure I had taken care of the little details that help make the day go smoother. I called my helper to make sure she everything was still okay, even though we had just talked about this Friday. I got her voice mail so I left a reminder message. When it was close to the time to go I called her again. This time she answered and told me that she had received a call yesterday about an important meeting that she had to be at this afternoon so she couldn't make it after all. So . . . Doug went back to work. I called the hospital and explained what had happened and rescheduled the appointment. Thankfully they were very understanding. So now we're scheduled to try again April 21.
Since I had already told the kids we weren't having school this afternoon, and now I don't have anything ready, and Amanda's not feeling good anyway. . . I guess I'll go do laundry.
Showing posts with label EEG. Show all posts
Showing posts with label EEG. Show all posts
Wednesday, March 24, 2010
Tuesday, March 16, 2010
A Few Things Begin to Come Together
It's 10:32PM and I'm typing this while waiting for the last child for the day to go home. Well, actually, that's not quite true. Another child leaves around midnight, but his mother just comes in and gets him and I don't have to stay awake and wait for her. Another child will be staying overnight so that his grandmother can go home and sleep after her shift. The first child tomorrow comes in between 5:00 and 5:30AM. It's going to be a short night. Normally the first child comes an hour later there was a slight schedule change for tomorrow.
Michael seems to be feeling better and slept well last night so I hope we've dodged anything too serious with him. I have been giving him Motrin before he goes to bed just to make sure he isn't hurting and can sleep. But he hasn't had a fever so I think he's fine.
Austin's pediatrician's nurse finally called me yesterday with a date for Austin's next EEG. It will be March 24th. When I asked her about the Pediatric Neurologist appointment, she first said that they wanted to wait until after the EEG. Then she said we already had an appointment to see the Pediatric Neurologist March 31. I pointed out that we were seeing the Neurosurgeon not a Neurologist but she didn't seem to get the point. So I guess I'll wait until after the EEG and then ask again. Frustrating! I am glad to say though that Austin is doing well, although I still definitely have some concerns. (For background on our adventure with Austin see posts here and here.) My impression is that the seizure medication is helping.
I'm excited because tomorrow I am scheduled to have an interview with a family about keeping two little boys, ages 1 and 2. If this works out it will mean I can have my helper come back full time. I've been waiting for this for about six months now. Whether I have three children or ten children to take care of they need my constant attention and it's hard to have to try to do the other work that goes with this adventure while also caring for the children. To be able to focus nearly exclusively on the kids during the day is a dream come true for me. If this family decides to bring the children here they would start on Monday. I'm hoping!
Michael seems to be feeling better and slept well last night so I hope we've dodged anything too serious with him. I have been giving him Motrin before he goes to bed just to make sure he isn't hurting and can sleep. But he hasn't had a fever so I think he's fine.
Austin's pediatrician's nurse finally called me yesterday with a date for Austin's next EEG. It will be March 24th. When I asked her about the Pediatric Neurologist appointment, she first said that they wanted to wait until after the EEG. Then she said we already had an appointment to see the Pediatric Neurologist March 31. I pointed out that we were seeing the Neurosurgeon not a Neurologist but she didn't seem to get the point. So I guess I'll wait until after the EEG and then ask again. Frustrating! I am glad to say though that Austin is doing well, although I still definitely have some concerns. (For background on our adventure with Austin see posts here and here.) My impression is that the seizure medication is helping.
I'm excited because tomorrow I am scheduled to have an interview with a family about keeping two little boys, ages 1 and 2. If this works out it will mean I can have my helper come back full time. I've been waiting for this for about six months now. Whether I have three children or ten children to take care of they need my constant attention and it's hard to have to try to do the other work that goes with this adventure while also caring for the children. To be able to focus nearly exclusively on the kids during the day is a dream come true for me. If this family decides to bring the children here they would start on Monday. I'm hoping!
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